Mom's Death and What Is Lost with Her

I've written a few things about Mom over the past three months--mostly short comments on facebook.   For those of you who remember my outpouring of pain and suffering in dealing with the death of Everly, you might notice a difference in my grieving this time.  Some of you remember that the family has endured a series of losses, beginning with the long illnesses of Herbie (Everly's dad) and Everly, Everly's death in July 2013, Herbie's death in May 2014, Aunt Dot's death in June 2015, and Hugh Delle's death on February 15 this year.  Each death, each relationship, has it's own weight on our family members' capacity to cope.

I was not surprised by the incapacitating grief that overcame me when Everly died.  I was a little surprised by the different kind of grieving I've had since my mother died.  People's experiences of loss don't come in a standardized schedule.  As a child and a very young man, my grandparents' deaths happened at the stage of life in which it was not unexpected.  Through the sadness of losing them I somehow made sense of their deaths.  But there was a turning point in my psyche with Everly's death, a different understanding of what a human life is and what anyone can expect from living in the world.  Dealing with loss moved from the margins to the center.

I go to this effort to write and post about grief, as I have said before, because many of you have told me that you appreciate thinking through these things with me.  Some of you say it helps you grapple with the confusion of grief and loss in your own lives.  So what follows is some storytelling about the past few years with Mom, with particular attention to her declining health.  More than any other reason, I write about this to help myself gain insight into how to live through loss and grief as a follower of Jesus.

Hugh Delle and I were privileged in the past few years to be together more than we had been since I left home for college.  Everly and I moved in to W. D.'s and Hugh Delle's home in 2010 to share life on a daily basis.  During that time, we developed everyday household routines as well as working through big decisions and life changes.  It was planned to be a short stay while Everly and I worked out housing, but it dragged out longer because the real estate market made it hard to sell our house in Durham.  By the time that finally happened, we were seven months into cancer treatments, and buying a house did not seem like a wise next step.  Mom and Dad welcomed us to stay, and we continued in our habits of living in one house that branched off into two wings, each with our private retreats when needed.  The common space for meals and conversations was a blessing to us all.  After Everly's death, I continued living with Mom and Dad for another year while I sought the direction for the next steps of my life.

Going through so much together built a mature kind of intimacy of mother-son relationship.  Growing closer, we knew much more about one another's lives than before.  Closeness brings blessings and warmth.  It also can give opportunity for disagreement or conflict.  We had our share of both, but I guess even the disagreements and conflict are a kind of blessing.

While Everly was so sick, Hugh Delle played down her own health issues, always claiming that "everything is fine."  Yet it was not fine, and long hospital stays, times of being near death, and the ever-present yet hidden matter of her chronic heart failure made it impossible for the rest of us to ignore her tenuous condition.  One of the pitfalls of living with one's parents is that too often adult child and aging parent revert to patterns of relationship that hark back to the child's adolescence.  In my own way, I sometimes reacted resentfully or critically toward Mom, especially about her health.  It frustrated me that she could not openly accept that her shortness of breath represented an underlying health issue to confront directly.  I could confess a whole range of my shortcomings of kindness in communicating with her, but let it suffice to say that our closeness included both harmonious times and painful times.  I suspect that is true for many of us.

After I moved back to Durham in August 2014, our time together was drastically cut back.  I had hoped to be able to continue a cycle of long stays in Texas with Mom and Dad, but as my faculty responsibilities returned to normal and my community involvement increased, I found it harder than I had expected to get away for more than a couple of weeks at a time.  Consequently, each visit met me with evidence of advancing health issues and change, and not much time to try to deal with the newness.  Mom became less able to do the things she wanted to do.  We would discuss options for making things better, and we added some support and help. 

For the most part, she continued to treat symptoms as passing acute illness rather than declining abilities.  In retrospect, I can't be sure whether her approach of proceeding as if things are fine while continuing to seek medical answers led to any different results than if she had done as I imagined her doing and aggressively pursued solutions to her heart failure.  As her heart grew progressively weaker, it may not have mattered whether she had been more aggressively attentive to that problem.  So probably part of the disagreement we had was about how to handle the grief of her decline. 

She preferred not to accept the idea that she was in rapid decline and hope that things would reverse and improve.  That's not such a bad approach, in that she could without much effort keep herself in a fairly happy condition at least part of each day.  Maybe she saw my perspective of admitting the progress of the chronic condition and dealing with it "head on" as a form of giving up hope.  I can't begrudge her her own way of facing challenges, of dealing with the grief of her declining health.

One result of her way of facing down the struggle was that most of us did not see the rapid decline she was in for the last eight months.  Only W. D. and Lydia were very aware of it.  After graduating form Baylor, Lydia had moved in the room where Everly and I had lived.  She was job hunting, and interviews were slow to get started.  She was glad to be able to offer some care for her grandparents, and she became increasingly concerned for the advancing pain and weakness Hugh Delle was displaying.  Remotely, the rest of us did not get the full impact of the night and day pain and struggle she was having.  Hugh Delle could usually muster up her happy and hopeful self for a phone call.  Sometimes she let us in on the harder parts of her life.

When the doctors began to tell Mom, at the beginning of 2016, that her heart condition was so far advanced that she should not expect it to improve, the seriousness of the condition became clear to all of us.  Jerene made the first trip down to see her.  At the end of a hospital stay for tests and decisions about next steps, it became clear that all the interventions that the doctors had considered were too risky for Hugh Delle's weakened condition.  They thought she probably had a limited time for her heart to continue working.  Already heart monitors revealed that her heart had brought her near death, and sometime in the next few weeks or months it would finally give out.

As we made the decision to bring her home and begin hospice care, I was able to go and stay for a while, with the cooperation of my employer and students.  I went back to teaching my North Carolina classes from Texas for an indefinite time.  Mom was glad to have her two kids home, and we helped organize her medications and treatments with the expectation that she and Dad would continue the routines with assistance from the hospice team and their fellow church members.  Almost as soon as we would make decisions and get the house in order, Mom's situation would change.  Spending many hours sleeping, she would sometimes become alert and join us for meals, only to get fatigued and go back to sleeping soon after.  Every few days, the obvious changes made clear to us that she was growing weaker and losing ground.

Eventually, she became confined to bed.  She did not have the strength or muscle control to help us get her up and move her around.  She stopped wanting to eat.  She was less and less able to communicate.  Her niece and nephew, Pat and Tim, both came to stay and help care for her.  All of my children made their way to Texas to be with their MeeMaw.  They sang to her, sat with her, talked with her, did everything they could, as she held on for her last days.  She lived to see her 86th birthday.  She was no longer very communicative, and she was not really eating.  The best we could do was touch her mouth with a little bit of cake and icing.  We read the scriptures, sang to her, and prayed with her.  On her last Sunday, we shared communion around her bed and offered prayers.  The next day, she died, surrounded by us.

I was very worried about Dad and Jerene.  I knew how I had fallen apart with Everly's death, and I felt some kind of responsibility to try to hold them up in the immediate crisis of Mom's death.  So I was feeling the emotions of losing Mom very differently than I had expected.  Grief is a strange thing.  It is not well scripted, although liturgical and poetic scripting can be a great help in uncovering thoughts and feelings that are hiding just below the level of consciousness.  The funeral service, planned by Hugh Delle, was filled with beautiful tributes and familiar songs.  Mom was beloved, and many people came from near and far to honor her life.  That day was an emotional day for me, and the structured events served me well in drawing out my pain and ministering to me.

On Easter weekend, March 27, I was surprised by grief.  If you go through our family's photo collection, you would find that year after year, there are family pictures taken at church on Easter Sunday.  For many years, David, Naomi, and Lydia are wearing outfits sent to them by Hugh Delle.  Easters were family days.  Even if we could not regularly spend them with Hugh Delle and W. D., there was a kind of presence of the whole family.  As I walked into church on Easter Sunday I felt overwhelmed by the loss of my mother and my children's loss of their mother.  It was a very tearful weekend for me.

I was feeling a new kind of loss for the first time on that day.  It has recurred on most Sundays since that day.  I was trying to explain it this week to Ruth, Everly's sister, and to a friend and fellow minister.  The experience of no longer having my mother living in this world with me seems to have opened up a space of loneliness that I did not know before.  For a long time, when I went to church or to a restaurant or some other place familiar to me because of being there with Everly in the past, it was as if Everly's palpable absence was my companion.  Her absence somehow took on a kind of presence through memory and familiarity of her having been there so many times by my side. 

Yes, that is a form of loneliness, but in recent weeks the loneliness has changed.  I found myself in the foyer of the church wondering whether I would have anyone to sit by.  Now inside, of course, were pews full of people.  I know most of them and would, as an act of fellowship or ministry, gladly sit on any pew with any person.  There is a kind of joy and purposeful satisfaction in doing that.  But it was not that kind of question my mind was pressing on me.  The question came from a lack, an empty place, a need.  I was feeling the need to sit with someone to whom I am already beloved, someone whose presence already speaks to me of their care for me.  My first thought was to look and see if Willie and Joanne Jennings were at the service.  Because they were out of town  that day, I found myself looked around for others. 

The point is that with Mom's death, I am finding myself again in a new place in the world.  Even living far away from her for most of my adult life, there lurked in my consciousness her presence to me at all times.  The one who had nurtured me, believed in me, prayed for me, and done all that she could to seek the best for me is no longer in the land of the living.  Where does that leave me?  Without Mom, I am alone in a new way in the world.  She had borne on her tired shoulders all of the burden of Everly's struggle with cancer and our family's grief at her loss.  And now she who held us up is also gone, leaving me alone in a new way.  Of course I am not absolutely alone.  I have my family and friends.  My church and coworkers look out for me.  God has never deserted me.  Even so, God's presence mediated through my mother's love has been muted by her absence.  I will need to recognize new habits and different relationships in which God's love will be manifest in my life.  It took some time for that to soak in, and I'm just now figuring out how to describe it.

The Road Is Long

Reposted from the CaringBridge site for Everly Broadway

This weekend I attended the Moral March in Raleigh to both display a commitment and be encouraged for the long struggle for justice in our state where it seems so many people, particularly leaders, forgot who we are and where we came from after the economy crashed.  When I listened to the remarks about public education, and when I read the stories of how things have changed so suddenly and dramatically in our state and our county, I find myself saying that I'm glad Everly did not live to see all of this.  It's only half true, because although I would want her to be free from the pain of seeing her work dismantled, I also wish I had her as a mighty ally to work to put things in order.  But I don't really want to write today about all those political struggles, except indirectly.

As I stood on Fayetteville Street near the NC Capitol, at one point a singer on the platform was singing Sam Cooke's song, "A Change Is Gonna Come."  Those of you old enough to remember can feel with me the deep emotion of the plaintive lyric that says, "It's been a long, a long time coming," and of course, what he waits for has still not arrived.  He holds on to hope for that change to come.  As that line echoed among the skyscrapers and marchers, and I listened to people talk about the struggles for voting rights, only to see them reversed, I felt that deep ache that resides deep within the human heart, that longing for a world to be set right.

Anyone who paid attention in literature class should know that poetic texts are by intent polyvalent (what dominant cultures love to falsely call "universal" when they want to claim all truth for themselves as the omniscient knowers).  Poetry describes specific people, events, and experiences, and yet the words inevitably connect with readers who find themselves in many other situations.  People who listen to Sam telling about his struggles to be respected and to simply live a life will very likely be drawn to places of hurt and longing in their own stories.  I hope it is not privileged appropriation to talk about this song in relation to my own long road of grief.  Connecting with another song, this one made popular by Everly's beloved Osmonds, "The road is long, with many a winding turn that leads us to who knows where."

This Wednesday, February 18 and Ash Wednesday, will be nineteen months since Everly died.  Those of you who read this, who miss her, and who have walked alongside following my writing before and after Everly's death, know that the journey has been long from her grand accomplishments as an educator, leader, servant of God, wife, and mother, through her courageous struggle to survive cancer, through her preparation for and acceptance of dying, and through her family's and friends' demoralization and disorientation after losing her from our lives.  I have tried to chronicle and reflect on it first here in this CaringBridge journal and then later at my "earth as it is in heaven" blog.

For a very long time, the emotion was raw and unbearably tender.  Many of us were regularly surprised by tears in unexpected moments, or not surprised at all by the tears and pain of remembering times when Everly was the best part of our day, of our lives.  I could not pass an 18th of the month without the pangs of loss, the memories of that day and her final struggle before peaceful release.  In the fall of 2013, a wise friend encouraged me that with time, even those last days might be remembered more for the joy and goodness of knowing Everly than for the wrenching pain of her departure.  I found that hard to believe.  I held a thread of hope that it would be true.  And finally, I am beginning to believe that it can be true.

"Grief work" has become a popular term in therapeutic culture.  I find it to be helpful to me.  It helps me recognize that the richer understanding and memory of those precious months and days with Everly will not happen purely by chance nor by inattention.  Even when there are unexpected moments of insight, those will not simply sprout from uncultivated ground.  For wounds to heal, I am having to apply the antibiotic ointments of remembering and retelling truthfully and lovingly the stories of living and struggling with Everly until I can see their beauty and dreadfulness.  I have to massage in the salves of wise words from others who have walked this kind of road to soften and mend the torn places.  Doing these things is hard work, like growing things in a garden is hard work.  I'll not hammer away into absurdity with these two metaphors, but move on.  The point you already get is that I have to put effort into healing and new growth. 

Much of my reflective work over the past year has been about what I would do next with my life, living a very different life than the one Everly and I had planned together.  For that reason, I shifted away from this site that had been more focused on Everly.  Love for her was the reason you all came to this site to read, and only secondarily to know about her loved ones as they pressed into the future.  But today I'm back because I again want to focus on the grief and loss that accompanied her last days of living.

A few weeks ago (just before Christmas), I wrote about a poem by Denise Levertov, "Terror."  In that poem, she draws a powerful image of the emotional changes that come in time after loss, when the immediacy and intensity of the pain begin to recede for many people.  Awareness of such moments can awaken a new terror that somehow the person who has been grieving has become hardened, stony, inhuman, for not feeling the same as before about so great a loss.  It described for me a very different feeling about the Christmas season as it came around the second time without Everly there to make the plans and decorate and wrap and make us all happy.  Sorting through the mixed emotions of trying to get on with the life that Everly expects of me and of not having such all-consuming sadness has been part of the grief work.

Last week I started another book in which a noted scholar and minister traces his own steps through loss and grief, Henri J..M. Nouwen's In Memoriam, written soon after the death of his mother.  Nouwen is known for his deep insights into the complexities of human struggle in this world and for the ability to articulate the ways that love must unfold and entangle itself in the relationships of our lives.  His gifts as a writer have meant that on most pages some turn of phrase leaps out or sears my consciousness with illumination of pain or joy.  Thus, I am taking it slow.

Today I read his account of spending time with his mother in her last days, when she found it too taxing even to speak.  He said that he and she had been using the same prayer book during her illness, so that even if separated, they were able to share the fellowship of reading the same prayers from the Psalms each evening.  Remembering being at her bedside with their days together soon to end, he writes,

Now there was no doubt that she was dying; it was so clearly written on her face.  It was so clearly written on her face.  I knew that we both knew.  But there were no words.  I bent over her face...."Shall I pray?" I asked softly.  She seemed pleased and nodded.  Knowing she would have asked me this if she had possessed the strength to speak, I realized that the words of the psalms would make it possible to communicate with each other in new ways....As these words were slowly shaped by my lips, covering her like a gentle cloud, I knew that we were closer than ever.  Although she was too ill to smile, too weak to say thanks, too tired to respond, her eyes expressed the joy we felt in simply being together.  The psalms...lifted the veil of sentimentality.  As soon as the words of the psalms were spoken, there was a strength, a power, and a divine realism between us.  There was a joyful clarity.  A mother was dying, her son was praying, God was present and all was good.  As she looked into my eyes, I knew that my gratitude for her presence in my life would live on within me.  As I looked into her eyes, I knew that she would die grateful for her husband, her children and grandchildren, and the joyful life that had always surrounded her.

I would not want you to infer from this selection that I am now deciding everything was happy in July of 2014.  Neither I nor Nouwen would sugar-coat those times.  Of course those final days were filled with questions, struggles, frantic emotions at times, and deep sorrow.  Yet they were not captured by those difficult aspects.  We also had the beauty of Everly's eyes, her smile, her demeanor, her humor, to accompany us.  When she felt troubled, afraid, or upset, we were there to listen to her calls, meet her needs, embrace her with love, and calm her with our presence.  In a house where death was soon to come, life remained the force and hope of a family intoxicated by our love of one another. 

What Nouwen's writing in this opening chapter brought to my mind was the way that Everly's children surrounded her with a peaceful, loving presence.  Sometimes we were all in the room with her, and I have vague memories of such times.  More often, we were in pairs or one-by-one sitting with Everly and opening our hearts to the sacred time with her.  Sometimes one of the children would sing every song she could think of, or even turn page after page of the National Baptist Hymnal and sing for Mommy.  Sometimes they would go to talk with her about deep matters of their lives, answering the questions they knew she would ask, opening the hidden places of their lives, hearts, and minds to the Mother whose love was so abundant and present to them.  I had my moments of sitting beside her, holding her hand, talking, singing, and praying as well. 

But what stands out to me is the way David, Naomi, and Lydia opened themselves up to Everly as instruments of peace, sewing love, pardon, faith, hope, light, and joy.  All of those gifts to their Mommy were mingled with aching tears, but they were tangible gifts nonetheless.  Not in Nouwen's way of the psalms, but in their own ways of hymns and songs, honest words from their hearts, hummed melodies, and gentle caring touches, they bore her body through the vale of tears, through the valley of the shadows.  Their giving presence eased her death with the comfort that she had loved her own in this world, and now could love them to the end.  I could wish for so many things to have happened to let her be here with us longer, and I do.  But short of that bliss, how could I ask for more than the beautiful human beings that she bore into this world, who stood by her in her darkest hour and blessed her name with their loving presence?

We all still struggle in the wake of those hard days.  They are difficult memories, but even as I compose these words, I do so behind tears of joyful memory mixed with the pain of loss.  So I give thanks that the beauty of those days increases in my memory, as I strive for endurance to produce character and for character to produce hope.  For hope does not disappoint us, because God’s love has been poured into our hearts.  We have seen that love poured out in the life of Everly, and we have seen it poured out into her children.  May they and I be the blossoming rose of Everly's love, strength, and courage in these days of our sojourn.

Mothers, Children, and Cancer

This started out as a Facebook post, and it's actually posted there.  But it got so long, that I realized it would have been better as a blog post.  So I'm duplicating it here.

This moment in time is so busy. I'm trying to negotiate a mortgage and a house purchase. I bought a car. David, Naomi, and I are all moving to new places. I'm closing and consolidating bank accounts. Lydia is finishing one summer school class and getting ready to start a second one, after she has barely gotten moved into a new apartment. I'm grading summer school papers and trying to plan for the fall semester. And Naomi and I chose this month, of all months, to take a trip to England, Scotland, Wales, Ireland, Amsterdam, and Berlin. I'm behind on filing my taxes because Everly always did that, but thanks to my always-generous mom's help I am getting close to finishing them.

And of course, this is the month, the final three weeks of remembering Everly's decline into and release from pain. In the busyness of this week, it's not always been easy to settle into a calm reflection on Everly's memory. When I can, it has mostly been conversations about what our kids need, and wondering how I can be a good parent without her.

So thanks to Gayla Brown Greeson for reposting from a blog she showed me a long time ago. It is a mother's reflections on her own struggle with cancer and her care for her three sons and husband. Although her life is very different from Everly's, I think she has a similar heart and a similar faith--not identical, but similar. She talks about the ways she can and ways she wishes she could show her love to her children. She talks honestly about the struggles of dealing with cancer fatigue, pain, medicated fog, and longing for release.

It is a beautiful testimony that reminds me of the beauty of Everly in her final months. So I'm going to link three of her postings from the past three months. If you want to read them, they will bring you some thoughts and memories of Everly or of another of your loved ones. They will also help you feel a bit of what she and others go through. And I hope they will give you reason to offer a prayer of thanks for the life she lived in faithfulness to the very end, and a prayer of love for her three children, David, Naomi, and Lydia.

June 29 Post:  Longing

May 21 Post:  From This Side

April 13 Post:  Catching Up