Mom's Death and What Is Lost with Her

I've written a few things about Mom over the past three months--mostly short comments on facebook.   For those of you who remember my outpouring of pain and suffering in dealing with the death of Everly, you might notice a difference in my grieving this time.  Some of you remember that the family has endured a series of losses, beginning with the long illnesses of Herbie (Everly's dad) and Everly, Everly's death in July 2013, Herbie's death in May 2014, Aunt Dot's death in June 2015, and Hugh Delle's death on February 15 this year.  Each death, each relationship, has it's own weight on our family members' capacity to cope.

I was not surprised by the incapacitating grief that overcame me when Everly died.  I was a little surprised by the different kind of grieving I've had since my mother died.  People's experiences of loss don't come in a standardized schedule.  As a child and a very young man, my grandparents' deaths happened at the stage of life in which it was not unexpected.  Through the sadness of losing them I somehow made sense of their deaths.  But there was a turning point in my psyche with Everly's death, a different understanding of what a human life is and what anyone can expect from living in the world.  Dealing with loss moved from the margins to the center.

I go to this effort to write and post about grief, as I have said before, because many of you have told me that you appreciate thinking through these things with me.  Some of you say it helps you grapple with the confusion of grief and loss in your own lives.  So what follows is some storytelling about the past few years with Mom, with particular attention to her declining health.  More than any other reason, I write about this to help myself gain insight into how to live through loss and grief as a follower of Jesus.

Hugh Delle and I were privileged in the past few years to be together more than we had been since I left home for college.  Everly and I moved in to W. D.'s and Hugh Delle's home in 2010 to share life on a daily basis.  During that time, we developed everyday household routines as well as working through big decisions and life changes.  It was planned to be a short stay while Everly and I worked out housing, but it dragged out longer because the real estate market made it hard to sell our house in Durham.  By the time that finally happened, we were seven months into cancer treatments, and buying a house did not seem like a wise next step.  Mom and Dad welcomed us to stay, and we continued in our habits of living in one house that branched off into two wings, each with our private retreats when needed.  The common space for meals and conversations was a blessing to us all.  After Everly's death, I continued living with Mom and Dad for another year while I sought the direction for the next steps of my life.

Going through so much together built a mature kind of intimacy of mother-son relationship.  Growing closer, we knew much more about one another's lives than before.  Closeness brings blessings and warmth.  It also can give opportunity for disagreement or conflict.  We had our share of both, but I guess even the disagreements and conflict are a kind of blessing.

While Everly was so sick, Hugh Delle played down her own health issues, always claiming that "everything is fine."  Yet it was not fine, and long hospital stays, times of being near death, and the ever-present yet hidden matter of her chronic heart failure made it impossible for the rest of us to ignore her tenuous condition.  One of the pitfalls of living with one's parents is that too often adult child and aging parent revert to patterns of relationship that hark back to the child's adolescence.  In my own way, I sometimes reacted resentfully or critically toward Mom, especially about her health.  It frustrated me that she could not openly accept that her shortness of breath represented an underlying health issue to confront directly.  I could confess a whole range of my shortcomings of kindness in communicating with her, but let it suffice to say that our closeness included both harmonious times and painful times.  I suspect that is true for many of us.

After I moved back to Durham in August 2014, our time together was drastically cut back.  I had hoped to be able to continue a cycle of long stays in Texas with Mom and Dad, but as my faculty responsibilities returned to normal and my community involvement increased, I found it harder than I had expected to get away for more than a couple of weeks at a time.  Consequently, each visit met me with evidence of advancing health issues and change, and not much time to try to deal with the newness.  Mom became less able to do the things she wanted to do.  We would discuss options for making things better, and we added some support and help. 

For the most part, she continued to treat symptoms as passing acute illness rather than declining abilities.  In retrospect, I can't be sure whether her approach of proceeding as if things are fine while continuing to seek medical answers led to any different results than if she had done as I imagined her doing and aggressively pursued solutions to her heart failure.  As her heart grew progressively weaker, it may not have mattered whether she had been more aggressively attentive to that problem.  So probably part of the disagreement we had was about how to handle the grief of her decline. 

She preferred not to accept the idea that she was in rapid decline and hope that things would reverse and improve.  That's not such a bad approach, in that she could without much effort keep herself in a fairly happy condition at least part of each day.  Maybe she saw my perspective of admitting the progress of the chronic condition and dealing with it "head on" as a form of giving up hope.  I can't begrudge her her own way of facing challenges, of dealing with the grief of her declining health.

One result of her way of facing down the struggle was that most of us did not see the rapid decline she was in for the last eight months.  Only W. D. and Lydia were very aware of it.  After graduating form Baylor, Lydia had moved in the room where Everly and I had lived.  She was job hunting, and interviews were slow to get started.  She was glad to be able to offer some care for her grandparents, and she became increasingly concerned for the advancing pain and weakness Hugh Delle was displaying.  Remotely, the rest of us did not get the full impact of the night and day pain and struggle she was having.  Hugh Delle could usually muster up her happy and hopeful self for a phone call.  Sometimes she let us in on the harder parts of her life.

When the doctors began to tell Mom, at the beginning of 2016, that her heart condition was so far advanced that she should not expect it to improve, the seriousness of the condition became clear to all of us.  Jerene made the first trip down to see her.  At the end of a hospital stay for tests and decisions about next steps, it became clear that all the interventions that the doctors had considered were too risky for Hugh Delle's weakened condition.  They thought she probably had a limited time for her heart to continue working.  Already heart monitors revealed that her heart had brought her near death, and sometime in the next few weeks or months it would finally give out.

As we made the decision to bring her home and begin hospice care, I was able to go and stay for a while, with the cooperation of my employer and students.  I went back to teaching my North Carolina classes from Texas for an indefinite time.  Mom was glad to have her two kids home, and we helped organize her medications and treatments with the expectation that she and Dad would continue the routines with assistance from the hospice team and their fellow church members.  Almost as soon as we would make decisions and get the house in order, Mom's situation would change.  Spending many hours sleeping, she would sometimes become alert and join us for meals, only to get fatigued and go back to sleeping soon after.  Every few days, the obvious changes made clear to us that she was growing weaker and losing ground.

Eventually, she became confined to bed.  She did not have the strength or muscle control to help us get her up and move her around.  She stopped wanting to eat.  She was less and less able to communicate.  Her niece and nephew, Pat and Tim, both came to stay and help care for her.  All of my children made their way to Texas to be with their MeeMaw.  They sang to her, sat with her, talked with her, did everything they could, as she held on for her last days.  She lived to see her 86th birthday.  She was no longer very communicative, and she was not really eating.  The best we could do was touch her mouth with a little bit of cake and icing.  We read the scriptures, sang to her, and prayed with her.  On her last Sunday, we shared communion around her bed and offered prayers.  The next day, she died, surrounded by us.

I was very worried about Dad and Jerene.  I knew how I had fallen apart with Everly's death, and I felt some kind of responsibility to try to hold them up in the immediate crisis of Mom's death.  So I was feeling the emotions of losing Mom very differently than I had expected.  Grief is a strange thing.  It is not well scripted, although liturgical and poetic scripting can be a great help in uncovering thoughts and feelings that are hiding just below the level of consciousness.  The funeral service, planned by Hugh Delle, was filled with beautiful tributes and familiar songs.  Mom was beloved, and many people came from near and far to honor her life.  That day was an emotional day for me, and the structured events served me well in drawing out my pain and ministering to me.

On Easter weekend, March 27, I was surprised by grief.  If you go through our family's photo collection, you would find that year after year, there are family pictures taken at church on Easter Sunday.  For many years, David, Naomi, and Lydia are wearing outfits sent to them by Hugh Delle.  Easters were family days.  Even if we could not regularly spend them with Hugh Delle and W. D., there was a kind of presence of the whole family.  As I walked into church on Easter Sunday I felt overwhelmed by the loss of my mother and my children's loss of their mother.  It was a very tearful weekend for me.

I was feeling a new kind of loss for the first time on that day.  It has recurred on most Sundays since that day.  I was trying to explain it this week to Ruth, Everly's sister, and to a friend and fellow minister.  The experience of no longer having my mother living in this world with me seems to have opened up a space of loneliness that I did not know before.  For a long time, when I went to church or to a restaurant or some other place familiar to me because of being there with Everly in the past, it was as if Everly's palpable absence was my companion.  Her absence somehow took on a kind of presence through memory and familiarity of her having been there so many times by my side. 

Yes, that is a form of loneliness, but in recent weeks the loneliness has changed.  I found myself in the foyer of the church wondering whether I would have anyone to sit by.  Now inside, of course, were pews full of people.  I know most of them and would, as an act of fellowship or ministry, gladly sit on any pew with any person.  There is a kind of joy and purposeful satisfaction in doing that.  But it was not that kind of question my mind was pressing on me.  The question came from a lack, an empty place, a need.  I was feeling the need to sit with someone to whom I am already beloved, someone whose presence already speaks to me of their care for me.  My first thought was to look and see if Willie and Joanne Jennings were at the service.  Because they were out of town  that day, I found myself looked around for others. 

The point is that with Mom's death, I am finding myself again in a new place in the world.  Even living far away from her for most of my adult life, there lurked in my consciousness her presence to me at all times.  The one who had nurtured me, believed in me, prayed for me, and done all that she could to seek the best for me is no longer in the land of the living.  Where does that leave me?  Without Mom, I am alone in a new way in the world.  She had borne on her tired shoulders all of the burden of Everly's struggle with cancer and our family's grief at her loss.  And now she who held us up is also gone, leaving me alone in a new way.  Of course I am not absolutely alone.  I have my family and friends.  My church and coworkers look out for me.  God has never deserted me.  Even so, God's presence mediated through my mother's love has been muted by her absence.  I will need to recognize new habits and different relationships in which God's love will be manifest in my life.  It took some time for that to soak in, and I'm just now figuring out how to describe it.

Palpable Absence

These are challenging days for the Broadways and Esteses.  We are still tender from the losses of our beloved Everly and Herbie, and we will be for the foreseeable future.  Today what stands out to me is a palpable absence.

It is the absence that is filling all available space.  It is not so much that I am thinking about specific things that Everly said or did, nor that I am seeing her in my imagination. All of that is true, but what seems to press most on me is the lack of the one who for so long was always in the midst of my life.

It struck me last weekend when I was attending a professional conference in Pennsylvania.  I have attended these meetings at this time for almost two decades.  On a few occasions, Everly and children have joined me for the early summer getaway.  Usually, I have gone on my own to be with friends.  We would call our wives or husbands during the evenings to catch up.  If I were giving a paper, I would report on how it went and whether I believed I was making significant scholarly progress.  I would tell her about various friends at the meeting, and she would fill me in on job, home, and the kids.

Thus my attendance at the CTS/NABPR meeting in late May and early June was a regular rhythm of our lives.  Though usually not together during those days, it was a time for mutual investment in my career progress, for thinking ahead into the summer plans for our kids, and for a period of years, a season of planning and sharing family time around our kids' high school graduations.  It was a time, even though apart, that we were in the work together.

That must be why on Saturday afternoon I began to be overwhelmed by waves of grief.  As I thought about how Everly would have enjoyed the weather and the beautiful scenery of Latrobe, PA, and the Lincoln Highway that took me there, her absence overwhelmed me.  I had driven alone from Durham to Latrobe, and it was a pleasant trip.  But car travel was often some of our most important conversation time.  Everly enjoyed sleeping in the car, but she also enjoyed working things out, figuring out problems, making plans, and generally talking through whatever was on our agenda.  I was feeling the absence in the car and at the many sights and stops we would have shared.

That night I turned on the iTunes playlist that I had made on our anniversary, May 24, 2013.  Everly never actually heard too much of it.  She was not much for listening to other people's music, or for much variety of music at all.  But I had put together the songs believing she would like them tolerably, and in the last weeks of her life I played this music often for my own help and comfort.  One of my friends came by my room to find me lying in the bed, listening to music, and sobbing.  He was at a loss, wanting to provide support if appropriate, but not sure how to respond.  I told him I was doing what Kate Campbell says in a song, "fading to blue."  I made as much sense of my mood as I could for him, and let him off the hook of needing to help me get through it.

Again, it was a palpable absence.  She and I would not share a traveler's room again.  We would not take scenic drives.  We would not enjoy the beauty of a new place.  The next day, I would drive home alone, and she would not be there when I got there.  It's the absence, above all, that weighed on me.

Today was another day of absence.  I have been looking at houses in Durham for the past few weeks.  I am relocating back to North Carolina, and I want to make this move a good match for my convictions about where to live in relation to my church and ministry.  It is my effort to respond to the first "R" of John Perkins's "Three Rs:"  relocation.  Perkins came to believe that the only way that church people can play a role in transforming their communities is to relocate to the neighborhoods where they feel called to minister.  In one way, it is a reaction against the dominant pattern of "commuter churches" which functions within a consumer model of "church shopping."  It elevates the neighborliness of being in walking distance of one another, of making friends of those around us.  In another way, it is the response to Jesus' incarnation, to go to the people where they are and live among them.  There are many implications for class and race that you should be able to imagine.

I had identified three neighborhoods in which to search.  Rather than go into detail about them and raise all kinds of questions about why I did or did not end up in a specific place, let me simply characterize them generally.  One neighborhood already has in it a number of friends who share similar views about relocation.  That would be a place to become part of existing structures and practices of community life, a very attractive possibility.  Another neighborhood has some churches involved in community organizing, as well as several which would likely be willing and even eager to join the broad based organizing efforts with the right kind of relationships and leadership to pull them into the fray.  Another neighborhood is near the church I have been attending, as a "commuter member," for almost twenty years.  It would mean putting my body and energy into sharing life with the neighbors who are in close proximity to the place our church meets.

All of these neighborhoods are outside of the main popular areas of town.  That means housing prices are somewhat or even significantly lower than the "aspirational" neighborhoods.  That is a good thing, since my income is much lower now than when Everly was our major breadwinner.  Combining the money from selling our Demerius Street house in 2012, savings, and insurance money, I am hoping to keep a purchased house as affordable as possible.  Yet, having lived in a very small house for 25 years, I do wish for a bit more space to spread out.  I also want plenty of room for my kids to come and stay a while as needed over the next few years.  Finally, I want to be able to be hospitable to neighbors and other folks God will send my way.

So today I was taking a third look at what seems to be the most promising house to come along.  No house has been perfect.  These are not perfect house neighborhoods.  Most houses are old.  The ones that are renovated to match the trends of the times start to be priced out of my range.  The ones that have not been renovated much at all often look like nightmares of slow, even interminable repairs.  Many are too small, too deteriorated, or too oddly arranged.  Buried oil tanks, water leaks, poor drainage, and shifting foundations crop up everywhere.  This house I was looking at had big promise:  priced low for its size, all new inside renovations which are done well, new HVAC, all new bathrooms, a big yard, nice porches, including an upstairs porch.  I know I could be pretty comfortable in the house.  Another small one not very far away lacks any "extra" room for me to spread out, and it also is not within the walking distance criterion that I want to stick by.

So on the third look, I can't help but see the things that undermine the house's promise.  There are some old structural concrete items that need to go, a dead tree in the yard, and branches from another tree too close to the house.  There are questions that will require an inspector to search around in the crawl space, which I have not yet tried to do.  A few details of the renovations are consistently left undone.  I'm uncertain about many things.  I need to talk it through.  My good friends Nancy Bumgardner and Joanne Jennings have been kind enough to go with me on separate occasions to look at this house.  They each have different and good insights into how to look at and evaluate it.  My realtor thinks it will be possible to have certain work done as part of the purchase contract.

But the absence is palpable.  There is one that I trust, one whom I want to please.  She understands the strengths in how I think and also recognizes my blind spots.  She is not here to talk this through.  So I go on trying to think on my own.  I can see multiple points of view, strengths and weaknesses, promises and potential dangers.  The yard is so big, and I'm not a lover of yard work.  The house has idiosyncrasies.  Will I get sick of them, or will they just become normal to me?  Can I make the space work as a place of hospitality for neighbors and for my family when they come to visit?

I would love above all to be able to sit and dream together about this or some other house and what we think about the life we could live in it.  We did that in Austin about a year ago, and we were actually in the midst of buying a house just twelve months ago.  It would have been the home for our last years.  We were trying to be near a certain church and in a certain neighborhood.  We felt pretty good about our options.  We were making room for all our kids to be comfortable visiting with us.  But the change in her cancer led us to back out of that contract.

Here I am a year later about to start the same process.  I wish I could sit and chat, share a drive, and ease into the comfort of knowing that the two of us are ready to face the challenges of a new home together.  I won't get that this time around.  And wherever I end up, there will be an empty side of the bed, empty closet space, and a big room with an even bigger palpable absence.  Yes, there is a constant and abiding presence of Everly in and with me all the time.  But that presence exists in and alongside her absence.