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Mike hopes to see the world turned upside down through local communities banding together for social change, especially churches which have recognized the radical calling to be good news to the poor, to set free the prisoners and oppressed, and to become the social embodiment of the reign of God on earth as it is in heaven.

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Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Tuesday, June 18, 2019

Defiant Imaginations, Part 1: Thoughts on Malcolm, Ruby, and Louis

Absorbing and responding to the Ava DuVernay film event, When They See Us, will take some time and more than one post here.  As I thought through what I might want to write, I found myself thinking back over some previous learning that seems to be relevant to what I have seen in this film.  So this first post goes back over a series of insights initially spurred by a textbook I used in the Shaw University undergraduate course, Foundations of Knowledge and Ethics.  It was an introduction offered to first-year students on the European and African American traditions of philosophical and religious ethics.  One of the thematic claims of the book has become an important part of my understanding of how persons and communities must respond to systems of injustice, and it continues to stir my moral imagination as years go by.

Robert Franklin's book Liberating Visions examines the lives and words of four important African American leaders who offer powerful moral visions for humanity.  He assigns each one a thematic adjective for the kind of life a person should live:  Booker T. Washington, the adaptive person; W. E. B. DuBois, the strenuous person; Martin Luther King, Jr., the integrative person; and Malcolm X, the defiant person.  Analyzing their views in light of character ethics, Franklin helps the reader see a social vision of the virtuous life, human fulfillment, and the good society through their eyes.  All are powerful social insights worth examining, but Franklin's interpretation of Malcolm X is the one that the music of  When They See Us has brought to the forefront of my thinking.

In theological studies, the term "prophetic imagination" has become a popular term.  Walter Brueggemann writes in The Prophetic Imagination that the tradition of prophetic ministry from Moses to Jeremiah to Jesus engages God's people in dismantling oppression and reconstructing a world built on justice in loving communities.  J. Deotis Roberts plays on the popular Protestant and Baptist theme of the "priesthood of all believers" in his ecclesiological book The Prophethood of Black Believers to emphasize how the black churches have contributed to a richer understanding of the task of the church than mere comfort and religious observance, extending into challenging injustice and working for the common good.  This prophetic calling finds a particular expression in Franklin's use of "defiant" to describe the imagination.  Defiance is a crucial element and a helpful descriptor of certain ways that the prophetic calling may find expression and embodiment.

Over twenty years ago, I was invited to participate in a conference on moral education sponsored by  Shaw's Program in Ethics and Values and Duke's Kenan Institute for Ethics.  I had anticipated following a keynote address by Robert Coles--no small task.  I was doing some research into his work in preparation, and it led me to reflect further on Franklin's interpretation of Malcolm. Eventually I presented my paper under the title "Political Realism and the Defiant Imagination." 

Realism is that school of thought in politics and theology which tends to fall back on the balance of powers mode of reasoning.  Keeping all the existing powers in a condition of balance or detente--not at one another's throats, but also not stirring much change toward better justice--is considered the best one can do in the real world.  Hence, realism offers little beyond incremental change for those who suffer under the crushing weight of oppression.  The very idea that someone might challenge the existing powers is considered both ludicrous and dangerous by the realist.  As Franklin realized, Malcolm ultimately did not let his imagination be captured by political realism.

Malcolm had been a budding, intelligent, and hopeful child, doing well in school until his early adolescent years.  Despite his giftedness, one of the teachers he had respected and trusted most advised him that he should not have ambitions to be a lawyer, to take up a profession of intellect and prestige.  He should be realistic and aim to take up a trade, a solid way to make money that would not require him to transgress into the realms of power and status in which he would not be welcome.

The story of Malcolm's life which follows that period shows his dissolution from the prior ambition to achieve into a life that accommodates itself to the world's worst expectations of him.  The white world, the world of powerful people, would expect Malcolm not to amount to much.  They would look at him and see something dangerous, something damaged, something likely to be trouble, and not someone.  They would not see him.  They would see a phantasm, a stereotype, an inevitability.  To some extent, one can look at his life and conclude that Malcolm walked down a path that fulfilled what the world saw in him.  They remade him in their image of his destiny.

Franklin recognizes, however, that Malcolm does not ultimately remain what society had expected him to be.  After being imprisoned for breaking and entering and larceny, Malcolm's original intellectual curiosity and drive began to resurface, largely because of the nurturing friendship of members of the Nation of Islam.  Malcolm reports that he began to copy the dictionary, line by line, page by page, to improve his reading and facility of the English language.  He began to read extensively in history, philosophy, and political thought.  He was instructed in the teachings of the Nation of Islam and trained in their discipline of a life in submission to Allah.  He saw that to accomplish greater things, he had to set aside impulsiveness and raging emotion.  He learned that the limits that had been placed on his life were artificial and externally imposed.  He learned to defy the expectations of society and aim for something greater and more in tune with his true nature.

Malcolm's defiance drove him to gain the education he had missed before.  He became a powerful speaker and capable leader.  He applied his practical knowledge to become a strategic thinker and incisive analyst of the political scene.  And when he was confronted with the inadequacy of the orthodoxies that he had previously accepted, he pursued with relentless critical effort the truth of historic Islam.  Malcolm represented a defiance courageous enough to challenge the existing power relations, to say what must be said, and to be persistent in the face of powerful forces aligned against him.  His radical critique conceded nothing in his effort to dismantle the dominant cultural systems which oppressed African Americans.

Remembering this account of Malcolm's life and his emergence as a leading intellectual of his time, I found myself drawn to Robert Coles's account of the remarkable young Ruby Bridges as another example of defiant imagination.  At age 6, her parents guided her to be one of the first four children to integrate the New Orleans public school system.  She was the only black student enrolling in her particular elementary school.  The white parents took their children out of the school.  Only one teacher agreed to teach in a school with a black child.  So Ruby's teacher taught the class with only one student. 

Federal Marshalls escorted Ruby to and from school because of the rowdy, violent protests that surrounded the school and the streets leading up to it.  Ruby was not particularly scared by the crowds.  She said they looked and sounded like Mardi Gras parties, with shouting and throwing things.  So she bravely walked in and out of the school each day.  Eventually, some white parents brought their children back to the school and the protests subsided.  Still, Ruby remained alone in her classroom.  In the next school year, the actual integrated classrooms began to come about in New Orleans.

Robert Coles became very involved with Ruby and her family, offering psychological care as much as was needed.  He learned a great deal in the process.  One of the central stories that he tells concerns an observation by her classroom teacher.  As Ruby was approaching the school, the teacher observed the little girl stopping, turning to face the yelling crowd, and saying something to them.  When Ruby got to class, the teacher asked about what she had seen.  Ruby explained that she had not been talking to the people, but to God.  Coles asked later for a fuller explanation.  Ruby told him that every day she stopped, usually before getting to the school, and prayed to God for the people.  That day she had forgotten until she was at the school steps.  Cole was shocked that her feelings toward this hateful crowd were leading to her have concern for them and pray for them.  She went on to explain that the prayer she said every day was to ask God to forgive them because they did not know what they were doing.

Her family and church had already instilled in Ruby a way of living in the world that was shocking to Coles and to many others.  They had joined a long procession of courageous defiers unwilling to let conditions of injustice stand.  They defied the barriers placed against the education she and other black children deserved, putting bodies in action to challenge the social order. 

Moreover, her family and community was already embedded in an alternative moral narrative.  She had understood the loving response of Jesus toward those who had done him wrong, and in defiance of the expectation that she should be afraid or should return hatred for hatred, she was seeking the good of those who wanted to do her harm.  She hoped against hope that her opponents could be changed, and she and her community imagined a better world could come about in which enemies become allies, even friends.  As an adult, Ruby Bridges still affirms that we must go against the grain of the world if we want to see change come for the better.

I became aware of a third example of defiant imagination during the period of Everly's illness.  A friend had given her a recording of "What a Wonderful World," made famous by Louis Armstrong.  Everly's first reaction was irritation.  She has never been a person who wanted to paint a rosy picture when things were not rosy.  No romanticizing and no pretending--she liked to simply say what she saw, what she felt.  So she could see no reason to play "What a Wonderful World" when she felt awful and the prognosis was not promising.  In what world could one call it wonderful to know that a person is dying of cancer at the peak of her life?  I understood her point.

It occurred to me that I had never given that song much thought.  I also wondered why someone might think it an appropriate recording for a friend who was fighting through cancer and chemotherapy.  But I knew that the friend was also not one to sugar-coat life's struggles or try to positive think oneself out of real problems.  I bought a Louis Armstrong album and took some time to listen to him sing the song.  I read a little about its themes and its popularity.  I began to understand that this kind of song represents a particular kind of defiance when sung by people who have been dealt every injustice and disadvantage by those with privilege and power.

There is a stance to take to the world when it treats you as if you are inferior, outcast, and unworthy, that defies those treatments.  It is a way of knowing the good, the true, and the beautiful that disavows the knowledge projected by the powerful.  Refusing to accept the world as it is offered, the defiant imagination of the oppressed recognizes that the good things in the world also belong to them.  They know the truth of the world, that it is not what the lies of the powerful would assert to be true.  They know that the beauty of the world, perhaps always mixed with ugliness, yet remains beauty.  In defiance, Armstrong can sing about the particular sights of natural beauty that he passes, the kindness of heart and soul experienced in community, and the hope of a better life as the struggle for liberation presses from one generation to the next.  Living in a world overshadowed by injustice, he can recognize that world as false, as the great lie.  In contrast, the truth remains that it is a wonderful world.

This is not the same as positive thinking.  It is a way of thumbing the nose at the oppressor.  It is a stone-faced challenge to the world's claim on one's life.  It's the laughter of one who knows that the joke is not on her.  It's not pollyannish blindness, but clear sight which sees both the wrong and the right.  It's not pretending, but a kind of honesty that knows tragedy as well as beauty.

I've been motivated to develop this discussion of the defiant imagination after having watched the powerful miniseries, When They See Us.  The title itself focuses on vision.  Presuppositions about the nature of the world and the people in it operate as filters on what human beings see.  The term "normative gaze" identifies a biased perspective shared by those who hold power in society and culture--their way of seeing things defines reality because it is assumed to be the normative way to see.

Yet the words and actions of those who are not in power can challenge the assumed truth.  Seeing beyond the current busyness, they may glimpse a truth not polluted or distorted by the interests of the oppressor.  Taken as part of a declaration, the film title names the way that white people see black people, one which automatically puts black people in jeopardy.  Taken as part of an interrogatory, the title asks whether the black young men have been truly seen at all.  In this case, the young men are waiting to be seen for who they really are, not for what the fantasies of white culture imagine them to be.  A defiant imagination gives its holder the possibility of challenging and overcoming the normative gaze of the oppressor.

The film project itself is an exercise of defiant imagination.  It challenges the dominant narrative, the way that the young men and their families were "seen" by the newspaper reporters, the police, the prosecutors, and by many of their neighbors.  In the next posting, I will discuss how various songs in the soundtrack of When They See Us help to feed a defiant imagination.


Monday, April 17, 2017

On Jordan's Stormy Banks--Reposting

I have been looking at the CaringBridge site recently again because of an injury to a little girl whose parents I know and admire.  She was struck by a car and severely injured, but she continues to make progress.  As is usually the case on CaringBridge, we don't know how things will turn out or how quickly they will change.  The long journal of my colleague and friend Dwight Peterson reminds us that we do a poor job of predicting how a person's life will endure.  The chance to keep up with one another and share presence keeps people coming back and praying for one another.  I know my love and hope for Amelia is growing with each story and picture that appears.
     While in CaringBridge, I looked back at the website I set up for Everly when she was ill.  I continued to write there well into 2015, almost two years after she died.  I took a moment to read the last journal entry, written in reflection on both her death and her father's death.  With the attention I've been giving to thinking about the presence of death in our lives, it seemed to me that this entry spoke into the struggle of living and dying, displayed in many ways around us and in the lectionary texts of the last weeks of Lent.  Therefore, I'm reposting for any who might wish to continue on that road of reflection with me.
Journal entry by Mikael Broadway

When I was still a pre-teen, I'm not sure when, but I think in Portland, Texas, around 1969 or so, I remember not the time but the experience of hearing the hymn "On Jordan's Stormy Banks I Stand and Cast a Wishful Eye."  I think it was the boisterous melody and rhythm that caught my attention, along with the lyrics which I could easily understand.  I also remember some kind of visual of a storm over a body of water, dark and menacing.  There were no music videos in those days, so I must have been looking at some sort of children's hymnal with illustrations.  Maybe I was at a children's choir rehearsal or "Intermediate Training Union" (you Baptists may remember that terminology).  I remember deciding to learn that song, and I still have an echo of that memory each time I hear or sing it today.

Recently, reading from Henri Nouwen's In Memoriam, I was reminded of that hymn again.  The short book begins by telling of the warm reunion with his mother when she was terminally ill, and the blessing and joy of being together.  He was reminded of the many ways in which her faith and faithfulness had anchored him and held their family together.  But after their initial time of gathering, he describes a dramatic change that happened in his mother.  She became less able to communicate.  She had moments of obvious struggle.  She seemed no longer at peace, but often disturbed, fearful.  She seemed to him to be in a fight against whatever evil, temptations, and doubts that she had suffered during her life.  He interpreted these days as a final battle as she prepared for the end of her life, a storm through which she was having to pass.

Part of what Nouwen was realizing was that his mother, who had often been for him a tower of strength, was a human being, a woman, who had her own struggles.  She was not just the one who helped the other family members with their struggles.  And he saw this working itself out in her last days of life.  His reflections, of course, put my mind into searching through Everly's days of dealing with cancer and its deadly outcome.

I thought through her last days.  From March to July 2013, there were many ups and downs with treatment and constant pain.  She was committed to do all that she could to keep living with us, and for the most part she pressed through whatever came, asking for help that she needed from us.  There were times when she became discouraged by the pain, but we kept seeking answers and trying to find a way to getting better.  Our family trip in May was for her a great triumph and celebration.  


There was only a short time remaining, but none of us knew that.  We kept looking at houses in Austin, hiring inspectors, thinking about how to fit all five of us in a house together, and even negotiating a contract.  At the same time, the cancer was doing its own work.  When our house-buying plan collided with the tumors' deadly growth, the time was nigh.  The doctors diagnosed the situation, and we learned there were no more medical solutions available.  We made the transition to hospice, and Everly lived less than one more week.

During that week, she did not have the same kind of struggle that Nouwen saw in his mother.  She was very vocal with her fear initially that she would be deserting us when we need her.  But her trusted friends shouldered their priestly role in granting her absolution, reassuring her that she had done all that she could do and all that God would expect of her.  They told her they would make sure her children never went hungry or had no place to lay their heads.  And she received this grace and began to rest.

If she had the kind of struggle about which Nouwen writes, it was during her first month after the diagnosis in 2012.  Already very sick, and considered potentially beyond help from medical intervention, she entered the hospital and received her first dose of chemotherapy.  Anyone who was following her story through this illness remembers that the first treatment almost killed her.  In that intial crisis, she fell deeper and deeper into a stupor.  Her body became weak.  She could not eat and had to be fed through a tube.  She slept constantly, and emerged to waking dreams and hallucinations.  


She sometimes awoke with fearful concern about some matter from work or from our family life, needing to give one of us instructions on what we needed to take care of, urgently.  Sometimes these troubled conversations dealt with some relationship or other matter about which she believed she had done wrong and things needed to be set right.  I know I was not the only bedside companion who served as her minister in that time of trouble.  Perhaps, during that time, it was the stormy Jordan she saw before her, and she felt her need to face the dangers head on and get herself ready for that crossing.

She came out of that initial sojourn in the wilderness with a new outlook on her life.  She took on the disciplines needed to regain her strength and to resist deterioration.  She talked of the peace she had made with her career and her previous years of hard work toward a powerful mission.  She considered what she wanted her remaining years to count for.  And through many ups and downs, she made them count as much as possible toward the goals of taking care of her family and reminding us of the beautiful life we had shared and would keep on sharing.

I don't mean that her 15 months, minus that first month-plus of hospitalization, were constant sunshine.  Everly certainly had fears and worries.  She was a worrier, but not to despair.  And she did not handle pain well.  Many of you have heard her say honestly, "I'm a wimp."  She did not like to get stuck for an intravenous tube.  She did not like any treatment that made her burn, or get chills, or get poked or prodded.  But that part of her life was not so different from before we had to face cancer.  Of course, every time we had to get a new CT Scan and reevaluate her progress, there was anxiety.  When the news was not as good as we hoped, there was disappointment and concern.  


I'm not trying to sugar coat things, but I think it is accurate to say that Everly did not face that kind of struggle against her potential dying as a constant overwhelming problem after the beginning.  She was not resigned to die, but she was not terrified by it either.  When she looked back at her experience of making it through those terrible days in 2012, she would tell us stories and share insights as one who had been through a great ordeal.  She spoke as one who knew something beyond what most anyone had known, having approached the brink of death, looked into it, turned back from it, and rededicated herself to a life worth living.  I think you will forgive me if at times I sound like I'm writing hagiography, but what I want to say is that she had faced something, had passed through the valley of the shadow of death, and she did not need to repeat those experiences and lessons again.  She already had learned that even there, God is with her.

So as I look at her last days in July 2013, I don't see intense dread.  She became upset sometimes as she dealt with losing control over her body, growing too weak, too tired, too foggy-brained to act independently.  But these were flashes and passing moments.  It was difficult to speak, but she would suddenly enter a conversation with perception, instructions, and even jokes.  It was hard to swallow well, and she would cough as one who felt she would choke, then rest again.  Mostly, she was at peace with her children and all of us who cared for her around her.

I think we saw more of this struggle, that Nouwen described, toward the end in the prolonged illness of Everly's father, Herbie.  His struggle was longer and painful in a different way.  He observed himself slipping into dementia and losing the strength from his athletic body.  He was exhausted but could not sleep peacefully.  The waking dreams were deep struggles for him.  I am not talking about his character or trying to say Everly did better.  I am merely describing a difference in the progression of mind and body.  Herbie's illness incited his brain in different ways than Everly's, stirring partial memories and robbing him of awareness of the loving people around him.  He feared being left alone and called out for Marie, his wife, at all hours.  He found himself running a race or fighting an enemy when he was simply in bed with family standing by.  He had fought so many battles, solved so many complex problems, trained his body and worked hard for so many years.  As that slipped away from him, he continued to fight and run.

What Nouwen learned, and what we learned from Everly and Herbie, is that our loved ones struggle.  Even when they have hidden it from us so well, they have had their struggles throughout their lives.  Some of those struggles come back to them as they take account of their lives and look ahead to what may remain.  Herbie was grateful for such a rich life, for the devotion and love of his marriage, for three talented and intelligent children, and for so many friends and young people with whom he had shared that life.  He hated to see that go, and the progress of his disease elicited his will to fight.  But some joys persisted through it all:  especially loving to be with Marie and eating ice cream.  Everly's illness took a different path.  But with both of them, we could honor their struggles and rejoice with their joys.

Herbie had been very clear about his approaching death while he was still able to communicate, before the strokes took his clear speech away.  He had had a good life, and he was ready to die.  It hurt him deeply that Everly's life would be cut short, while he might live on after having already had a full life.  Like any parent, he would rather have taken her place so that she could live on.  Long before he died, he had "cast a wishful eye to Canaan's fair and happy land."  And as we numbered Everly's last days, she also faced with a willing heart that she was "bound for the Promised Land."

I think that in writing about this, both Nouwen and I are striving to be honest, to tell the truth.  Dying often is not, as many of us hope and imagine, an easy slipping away.  It is not only having family together and saying good-bye.  It is also a struggle to let go of the only good that we have known and to face the ways that we did not live in every way as we had aspired.  I can't think of any more appropriate way of handling our grief over Everly than being honest about our living and being honest about our dying.  


We get so focused on our own experience of our loved one's death, and that is to be expected.  What Nouwen did, and what I have tried to do here, is also to collect and put together the clues we have of what our loved one went through.  We can't say we know it with certainty, especially those periods when they were not able to speak to us about it.  But we can take what they did say, and what their convictions have been, to see through a glass darkly, until that time that we see face to face in "one eternal day where God the Son forever reigns and scatters night away."
No chilling winds or poisonous breath
Can reach that healthful shore.
Sickness and sorrow, pain and death,
Are felt and feared no more.

Thursday, January 19, 2017

Listening with Patience and Letting Music Do Its Work

I've not put much stock in the theory of art as purely the artist's expression of an inward state.  Art, no matter how personal, remains a public act with communal significance.  Not to belabor the point, but why use a canvas?  Why this paint or that clay?  Why this instrument and this tempo?  There are numerous potential reasons why an artist struggles to get work into public view.  Even the desire to have one's art recognized is something more than just wanting personal validation.  It is better understood as a form of communication, of connecting with others.

Thus, when I claim in the title that music has work to do, it is a work of communication.  Music's communication may operate at many levels.  These ramblings about art and music arise out of spending an evening listening to Branford Marsalis and Joey Calderazzo play saxophone and piano as a jazz duet.  Interviewed about their collaboration, Marsalis argues that the jazz duet is not merely a mini-quartet or a truncated ensemble.  It is itself a distinct kind of performance able to display its own communicative style of close collaboration, sensitivity, and balance.  Marsalis says, "The object is not to play in the same way that you play in other situations.  You have to change the conversation as well as the setting.  Once you know the form, you can just react to each other." 

Their further reflections on their engagement with the music as a duo help the reader, and listener, to understand there is a kind of work going on with musicians that is at least part of what I mean when I say that music is doing work.  It is the musicians, of course, who drive and make the music live.  This is why at a jazz concert, one learns it is appropriate to give applause when one musician in the ensemble completes a "solo" or highlighted portion of a longer musical composition.  People don't do that during a harpsichord concerto at the end of the harpsichord section, but in a jazz performance, when the pianist has carried the lead for some time and then recedes back into the balanced ensemble playing, clapping is appropriate and expected.  Jazz audiences, in a less formal relationship with the performers than in classical performances, immediately recognize and acknowledge the virtuosity and the effort it takes by communicating their appreciation.  At classical concerts, the audience struggles to demonstrate patience when moved by the musicians' art and waits until the end of a lengthy composition.

To take an aside, I did not grow up in a family which schooled me in the appreciation of jazz or classical music.  My introductions to these was slow, through the music education programs of public school and college.  Our music came more from folk traditions, church hymnals, and popular gospel and secular radio.  If my mom used the word "jazzy" to describe music, it was not a compliment.  Beyond that home training, in high school I sang and listened to music of various eras of Western culture, from Medieval, Renaissance, Baroque, Classical, Romantic, Neo-Classical, and Modern eras.  We learned the discipline of remaining silent until an entire piece was finished before offering applause.  In college, my exposure grew through public performances of chamber music, orchestras, string and woodwind quartets, and occasional jazz. But learning about jazz really came later from listening to the public radio station in Dallas during my two years working there. Even now, I have attended few live jazz performances, and when I do I appreciate the chance to go with a friend from whom I can learn, by observing, the skills of listening and appreciating what I see and hear.

The work of music is partly understood as the work of the musicians, but there is in music as in all art a surplus of work that is greater than the particular agents of its production and performance.  Scientific study confirms many anecdotal links between music and the brain, affecting emotion, reasoning, creativity, exercise, memory, and personality.  I won't try to report on all these scientific studies.  A quick internet search will uncover popular and scientific resources about the complex relationship between music and the brain and body.  Play around with the search terms and you may, like me, find yourself reading all kinds of research and commentary rather than this blog post.  Rather than be comprehensive or even particularly scientific, I will comment briefly on a few aspects of the work music does for human flourishing.

Perhaps most obvious to many people is the emotional and formational link one retains to the music one listens to during formative periods and significant moments.  Music marketers have developed business models around stratifying the various niches in which people become attached to musical styles and artists during adolescence and early adulthood.  Music of the 60s, of the 70s, of the 80s, etc., become the organizational structure for attracting a certain type of listener to whom advertisers can target messages to match the demographics.  This business use of music taps into something many of us have known personally--that tunes, rhythms, instruments, and songs of a certain era propel us into memories or emotional states relevant to deeply formative parts of our history. Certain beats and tunes stir the confusion and rebellion of teens frustrated by the struggle between independence and parental authority.  Songs and lyrical hooks may evoke early attempts to understand feelings of attraction, infatuation, and one's bodily awakening as a sexual being.  Longings, hopes, and decisions about life direction may have close ties to a personal "musical score." The work of music clearly includes an interplay with crucial emotional and formational eras and mileposts in one's personal narrative.

The mention of a musical score points to another aspect of music's work.  Music taps deep structures of the brain to arouse emotion: anxiety and fear, sadness, anger, attraction, happiness, excitement and more.  While not all people respond to the same music with the same emotion, there are widely accepted patterns of "happy" and "sad" music, shaped by harmonies, rhythm, tempo, volume, timbre, and other complex aspects of music.  I tend to be skeptical of overgeneralizations about happy and sad music, but scientific study tends to support links between emotional perceptions of music and emotional reactions to other sensory perceptions.  Listening to a "happy" or "sad" musical clip will likely influence a person's perception about facial expressions as more happy or sad. Some theorize an ancient link between music and the sound of active human living as influencing this reaction in the brain.  Even without needing the hard science, the use of sound tracks to shape the mood of a movie is a widely tested and effective sign of the work music does. Many people regularly choose music to play at home or in their headphones at work or out in public with an idea of influencing a mood toward happiness, energy, melancholic remembrance, or meditation.  Music works in our brains and bodies to reinforce or redirect our moods, even without our conscious planning.

Finally, there are many directions of research on the relation of music to strengthening reasoning ability, to helping focus mental activity, and to opening up creativity in thought.  I am particularly interested in the work of music to spark creativity and reflection.  "Brain science," a term of growing popularity, is apparently something different from psychology or physiology or philosophy.  I take it to be a specialization related to each of those fields, using newly available knowledge to offer insights that could be valuable to all of those older disciplines.  Brain science offers explanations rooted in the activity or reduction of activity in various parts of the brain under certain circumstances.  One such explanation says that just the right volume and type of music can create enough disturbance in brain activity that a person's most routine reasoning and memory patterns become interrupted, requiring the brain to work a little harder, to work around interrupted routines, and seek creative solutions to problems.  I don't really know how to evaluate how credible that explanation may be. Yet, it offers one kind of reasonable explanation, rooted in basic brain function and in growing knowledge about  the complex process of memory and reasoning. Regardless of how accurate the theory may be, the actual work of music to stir creativity has wide anecdotal support.

To wrap up my ruminations on letting music do its work, I will go back to my seat in Baldwin Auditorium, listening to the jazz duet.  Not really a novice any longer, but far from a connoisseur, I listened with eagerness to the various ways the two musicians intertwined their roles, sometimes stepping back or forward as accompanist and lead, and other times mingling two lines into one.  I was listening with a friend with much longer experience of attending live jazz performances, so at times my learning included watching her responses to the music to help me understand what might be going on in the room.  In a fancy auditorium at an academic institution, I gathered that the crowd was somewhat stiffer, with less bodily movement of the head, legs, and feet, than one might see in a different venue.  There were times when it seemed I ought to be standing and moving my body, but not on this night.  Different styles and melodies took my thinking in different directions--sometimes into issues of work and intellect, and other times into relationships, social life, and politics.

There is an interesting relationship between the listener's thoughts and feelings about a piece of music and her or his desire to know a "back story" of how a piece came to be written, or when it emerged during the life of the composer.  This is not essential, and in fact may function to limit the creative reverie that music may incite.  Yet, it also can be part of the complexity of how music works. In one case, Joey Calderazzo told a story about a piece before he played it.  He does not always tell it, but the performance fell on an important anniversary relevant to this particular composition in which he was engaging his thoughts and feelings about a dear friend who was struggling with cancer. He mentioned being on tour, performing in many different places, yet looking regularly at the postings about his friend on the CaringBridge website, where people dealing with terminal illness (usually cancer) and their loved ones can provide regular updates about the progress, or regress, of their health as they deal with various treatments, symptoms, improvements, and setbacks.

Some of you readers know that I spent about a year and a half writing on CaringBridge during Everly's illness and after her death.  So the mention of CaringBridge immediately set my thoughts and feelings on a trajectory.  As the duo began to play the piece, named "Hope," I was already on track for a tour of memories.  A few years ago, I may not have been able to listen to the music because of the intensity of grief.  I'm not completely sure how to describe this particular moment which is the primary reason I am writing about the music.  The music went to work.  I was listening and being drawn along by the melody and rhythm. 

At the same time my imagination took me to the M.D. Anderson Cancer Center in Houston.  I saw the waiting rooms in various clinics.  I recalled the hospital rooms where we waited for and through treatments.  I saw the pharmacy, the doctor's examination rooms, the hallways, the pre-op and recovery rooms. And there were so many waiting rooms.  I remembered Everly's moments of impatience during the tedious waiting for CT scans, having to drink barium shakes to get ready.  There were times when she was anxious and needed me in sight.  There were procedures that lasted hours and left me wandering the halls.  Sometimes I even taught my classes through video and audio conferencing in the lobby of the hospital.  Mostly, it was a chain of memories of the two of us doing our work to live a little longer and share time with our kids, our families, and one another.

I did shed some tears, but the interaction between the music and my thoughts and feelings was more complicated than a mere trigger for sadness.  I'm not sure sadness accurately describes the emotions that accompanied the work this music was doing.  It was an opening to creative possibilities.  It was not only a memory of loss, but also a memory of effort, of unified struggle, and of hope for what might still await us. I'm inclined to think that what was going on between me and the music is partly described as creative thinking. It was not merely a catalog of memories, nor a sinking into a blue mood.  It was also a process engendering the love, the hope, and the good that went on between us, and even among us in relation to the medical staff, as we lived that struggle toward what we did not yet know would come to pass. I'm not trying to make this sound like a mystical vision, because it wasn't.  Yet I found myself in that evening in a concert hall in a kind of creative simultaneity with the remembered time in Houston, when the future was not known and the possibilities awaited.  Thus, there was a mixture of grief and hope, tied together in the beauty of having lived alongside Everly during those events, as well as in her presence in memory now amidst all that my life can and may yet be.

I don't want to overdramatize or idealize a song at a concert.  I'm trying to describe through self-report and reflection what I think appears as a possibility in the way music works and can work in many occasions.  I did not take a flight of ecstasy.  It was not one of the highlight events of my life.  Still, it was a moment of power, a glimpse of glory, a flash of soaring that opens the eye to possibilities that may not seem obvious in most of the mundane hours of work and routine. I think that the right kind of listening, with patience, can let music do some amazing work. 



Sunday, June 29, 2014

Mothers, Children, and Cancer

This started out as a Facebook post, and it's actually posted there.  But it got so long, that I realized it would have been better as a blog post.  So I'm duplicating it here.

This moment in time is so busy. I'm trying to negotiate a mortgage and a house purchase. I bought a car. David, Naomi, and I are all moving to new places. I'm closing and consolidating bank accounts. Lydia is finishing one summer school class and getting ready to start a second one, after she has barely gotten moved into a new apartment. I'm grading summer school papers and trying to plan for the fall semester. And Naomi and I chose this month, of all months, to take a trip to England, Scotland, Wales, Ireland, Amsterdam, and Berlin. I'm behind on filing my taxes because Everly always did that, but thanks to my always-generous mom's help I am getting close to finishing them.

And of course, this is the month, the final three weeks of remembering Everly's decline into and release from pain. In the busyness of this week, it's not always been easy to settle into a calm reflection on Everly's memory. When I can, it has mostly been conversations about what our kids need, and wondering how I can be a good parent without her.

So thanks to Gayla Brown Greeson for reposting from a blog she showed me a long time ago. It is a mother's reflections on her own struggle with cancer and her care for her three sons and husband. Although her life is very different from Everly's, I think she has a similar heart and a similar faith--not identical, but similar. She talks about the ways she can and ways she wishes she could show her love to her children. She talks honestly about the struggles of dealing with cancer fatigue, pain, medicated fog, and longing for release.

It is a beautiful testimony that reminds me of the beauty of Everly in her final months. So I'm going to link three of her postings from the past three months. If you want to read them, they will bring you some thoughts and memories of Everly or of another of your loved ones. They will also help you feel a bit of what she and others go through. And I hope they will give you reason to offer a prayer of thanks for the life she lived in faithfulness to the very end, and a prayer of love for her three children, David, Naomi, and Lydia.

June 29 Post:  Longing

May 21 Post:  From This Side

April 13 Post:  Catching Up



Sunday, May 25, 2014

Our Anniversary, a Day to Remember That There Is Good in the World

A year ago I sat at a dinner table with Everly, David, Naomi, and Lydia.  There was a bouquet of flowers from the children to honor the occasion.  Everly and I were sharing our 33rd wedding anniversary.  We had been busy all day at the beach and looking around in Cozumel.  Back on the ship for dinner, we were having a good time and happy to be together.  I toasted the evening and said to all our Broadways gathered that night, "It's been thirty-three great years, and we will do this again thirty-three years from now for our 66th anniversary."

It was a joyful time, even though Everly was struggling with back pain and other cancer pain.  We were together with our three children for this vacation on the cruise ship, just the way Everly liked--there was no planning of meals or preparing and cleaning them up, no driving or finding hotels.  We just moved in for the week, slept when we wanted, ate the food, toured as desired, and relaxed.

Through her long illness, I tended to hang on to any optimism that I could.  I kept up my hopes, and on our anniversary I focused on the possibilities for managing cancer and living a long time.  In fewer than two months, she would die.  But at that point, I was pushing the idea of having 33 more years together.  As it turns out, we are stuck with only 33.  The rest of the years are what might have been.

So today, I am looking back across many anniversaries.  Because the recent history of dealing with cancer still looms so large, memories of many of those days do not seem so clear.  For our 20th anniversary, we took our first cruise.  It was on a small cruise ship and lasted four days.  Everly and I relaxed together and did some touring to ancient Mayan ruins in the Yucatan.  On our 13th anniversary, I passed my dissertation defense to complete my doctoral studies.  When I got home to bask in that moment, I received a call offering me my first job as a professor, a one-semester sabbatical replacement at Elon College, just down the road a ways from Durham.  That was a day to remember. 

On our second anniversary, in California, we took a weekend trip to Carmel-by-the-Sea, where we stayed in a bed and breakfast and enjoyed the beauty of the village.  Our first anniversary was a day spent at Pier 39 in San Francisco, discovering a little kiosk called "Mrs. Fields' Chocolate Chippery," which was getting ready to expand to be a huge national chain.

That first anniversary was, of course, one year after two very young people, practically still kids, had mustered up the courage to make commitments to one another to "let love be genuine; hate what is evil, hold fast to what is good; love one another with mutual affection; outdo one another in showing honor."  We promised to share our whole selves and whatever possessions we might have or acquire.  We gazed into one another's eyes, surrounded by an unfaithful world where people seldom keep their commitments, and promised unending faithfulness to one another and to the God we both serve.  We received the encouragement and embrace of God's people, the church, to help us live up to these commitments we made to one another.  And we never looked back.

On that day, the potentiality of a loving, caring home began to take shape.  It was six years later, back in Texas, that our love for one another and for God was enlarged to include a tiny baby boy.  That treasure came just days before our anniversary.  Then every three years another child arrived, fairly close to our anniversary day, until we had received the blessing of the three beautiful children who have now grown into their own adulthood.  That wonderful uniting of two lives to make a home has borne fruit in these beautiful people--David, Naomi, and Lydia.  Were Everly and I not able to accomplish any other good things, we could be satisfied to see so much goodness come into the world as these three people bring every day.

I faced this day with some trepidation.  A day for good memories is now also a day to be reminded of the depth of my loss.  The anniversary date returns, but the life together is no longer what it was.  I got some good advice to seek out some friends who would be understanding of how this day matters and affects me, and ask them to spend part of the day with me.  So I called one buddy to meet me for breakfast, since we were already working on getting together.  The middle of the day was teaching a class, and I could press through that responsibility without much difficulty, mixing in a reflection on Everly and this day as appropriate.  Then after class, my friends Willie and Jay hung out with me for the afternoon and evening. 

There were extra blessings of phone calls from family and friends, texts and messages of support.  What had seemed would be a very rough day turned out to flow along smoothly.  My boat was buoyed by the love and support of others.  I didn't sink.  I kept on sailing through.  There were tears at times, some moments of heartache, some times of feeling deep love, and all the kinds of emotions that one might expect.  But no great wave of sadness swept over me.  There was sadness, but not despair.  I made it through the hardest "first" yet. 

This will be, I think, a difficult two months.  From this time last year and on through July, the news was never quite good news.  There was still hope that a new treatment regime might put us back on a track toward shrinking the tumors.  There was encouragement that radiation could make the increased back pain go away.  There were possibilities that continued to keep me as busy as necessary to facilitate Everly's seeing the doctors and going to the clinics where we hoped to find help.  But finally in early July, the possibilities began to disappear, and eventually only one likely outcome remained.  The shift from medical intervention to hospice care came suddenly, and she only lived a week beyond that change.  So the milestones coming back around at this time of year are not necessarily the ones I would wish to be remembering.  Even so, I need to live through them reflectively and receptively with eyes and ears for what I need to understand about those whirlwind days of 2013.

I know that the conventional wisdom says to try to remember the joyful happy times and not only the sad and painful times.  I get that.  I don't really need people to be reminding me of it.  I have not forgotten the beautiful, pleasant, joyful, contented times of living with Everly.  But I also cannot deny the pain of those days when hope for recovery turned to hope for relief and ultimately to hope for release from all her suffering.  Hope never died, but we had to learn to hope in new ways.  Just like I wrote about her dad, she had fought the good fight.  She had run the race and finished the course.  She could now receive the crown of righteousness that her virtuous life had earned, that Jesus had provided by grace. 

So I can remember all these things.  But especially this first year, I also must remember and reflect on the days which were passing so rapidly, so filled with frustration and questions, too dense for full understanding while we were in the midst of them.  Days that for me might have seemed full of anticipation for a turn toward the better were the very days in which she was not getting better.  She had some sense that her end was coming, even though she was determined not to give up.  I was less aware, or less ready to see the signs.  She was weakening fast, and I was still grasping at potential remedies.  All too soon, her struggle became too great to bear.  Remembering this is also a good thing.  It is an honoring of her whole life.  I'll not deny the strength and courage she showed as the disease slowly took away her capacities to live with the vigor she had always known.  They were days of struggle, days of loving, days of intimate conversations, days of grace upon grace.

How many people get 33 years to share a good life together?  Not nearly enough, if that life can have the kinds of joys that Everly and I were able to share.  So this date on the calendar, May 24, will remain a day to mark what is good in the world.  A young singer, Marc Scibilia, penned some lyrics that touched me deeply when I first heard them about a year ago, just before our cruise.  Is it a great song?  Maybe not, but it does speak a clear truth about how one ought to face the vicissitudes of existence.  Find the good, and hold onto it with all you've got.
It takes a lot of time.
There's so much you've got to leave behind.
But hold it like a treasure if you can find
Something good in this world,
Something good in this world.

There's so much hard earth to dig
In these days of curse that we live.
I'm absolutely sure that in the midst,
There's something good in this world.
There's something good in this world.

And life will try to take
Your innocence and your grace.
But no matter what comes to your door,
You've got to keep looking
For something good in this world.
As long as a memory of Everly remains in me, I will never doubt that there is something good in this world.  She is the treasure to which I hold, the one I found to be the good worth living for and even giving myself up for.  I'll let nothing take that from me.  Today is a good day, a reminder that there's something good in this world, and I have known her.

Friday, April 25, 2014

Do You Want to Be Healed? Conversating Down by the Pool of Bethesda

Scholars classify the sayings of Jesus in various ways:  parables, aphorisms, dialogues, etc.  Some who have studied them have focused on conversations or "interviews" Jesus has with various people.  Preachers in our individualistic age particularly love these sorts of sayings.  In such conversations, a sermon can leverage Jesus' compassion, wisdom, or straightforward (even harsh) truthfulness into an assumed conversation between the Lord and the person in the pew.  Probably most who read this have heard a sermon on this text.

Sometimes these Gospel stories portray Jesus asking a question of someone.  One favorite such question appears in the encounter between Jesus and a paralytic man by the Pool of Bethesda.  In this conversation, Jesus asks the man, "Do you want to be made well?"  The man had lay by the pool, reputed to have intermittent healing powers, for a very long time.  Read superficially, the question almost seems like small talk:  "Hi, there.  How's it going?  Are you hanging out here to be healed?  Good seeing you today!" 

But when we let the question soak in a bit, it becomes a kind of probing, even intense question.  It pushes past superficiality and goes to the heart.  Having been there so long, waiting ostensibly to be healed, was this man finally resigned to stay as he was, content with things as they are?  Certainly, even in hard situations, we often find some level of satisfaction, some reward even in our disappointment, some ease in having settled for things as they are.

It's a harsh question; perhaps, even rude.  The man answered defensively by saying that no one would help him get to the water when the healing powers were present.  One might imagine his answering in our age by saying, "You don't know me!  You can't judge me!  Who do you think you are?"   It was that kind of hard question, forcing the issue, pressing past the excuses.  If listened to carefully, it was a disorienting question.

I have thought a lot about this passage during the past month.  I have started meeting with a counselor for help in facing my life without Everly.  It is a reorienting process.  I am living in a season of uncertainty, trying to imagine a different life than continuing to serve God as Everly and I grow old together.  The rest of my growing old will be without her.  What will that be like? 

I probably "put too much of my business out in the street," but the writing itself is a very powerful process for my self-understanding.  So here I go again.

Even before Everly was diagnosed with cancer, I was dealing with some problems.  Relationships at work had gone sour in several cases.  Some colleagues were eager to see me gone from the faculty, and there was a corresponding trend of vocal disapproval by some students that was eating at me.  At my annual physical, my physician said I was showing signs of depression.  I found it hard to go to the office, and when there I found it hard to concentrate and get my work done. 

As most of us would, I came up with various plans by which I would get my life back on track.  I made regular commitments to myself to set up a schedule, to segregate my activities, to improve my habits.  Nothing that I was trying was making much difference.  Everly was concerned, but at a loss on how to help me.  Moreover, her own stressful job was enough for her to handle.  She could not carry my load, too. 

So for several years, I floundered, trying to recover the productivity of my earlier years.  I accomplished some big things during that time.  I helped lead some statewide organizing work among theologians and IAF groups dealing with the economy.  I became involved in the same work on a national basis, even chaired some major national meetings among PICO, IAF, and other local organizing groups.  I received honors for this work.  I wrote and delivered theological papers which received praise from many scholars.  I helped rebuild a robust faculty senate at the university. 

But in between the big events, I often found it nearly impossible to make progress on daily work.  It became my new mode of life.  I got used to it.  I was not sure things would ever be different.  I wondered why I was staying in my profession.

The first big question I needed to face in counseling was this:  "What are the rewards I get by avoiding my daily tasks and putting off work that I need to do?"  It was a surprising question, a way of looking at the problem from a different angle.  Anxiety, regret, guilt, disappointment in myself, little hope for change--these were the ways that I would have described my situation.  They are not what one would normally call rewards.  But it seemed a worthy question, and I mulled it over for days. 

What began to emerge was a sense of the way that occasional anxiety and guilt mixed with longer periods of ignoring and denying other things I needed to do was a kind of reward.  I could avoid the more intense anxieties that came up when I pressed into my work--the philosophical struggle with the validity of grades, the disappointment of occasional plagiarized work, the marginalization within the office politics.  These rewards had become the minimal compensation that came from not dealing with the harder matters in my life.

So it is no surprise that my life did not make a sudden upturn when we discovered Everly had cancer, and we struggled through those fifteen months of fear and hope and loss.  Our focus shifted toward supporting her through pain and treatments.  We had to think about the possibilities of her death and its effect on the children and me.  We had our ups and downs, and we had even begun to think that she might be able to live with the cancer for several more years.  But all of that gave me very justifiable reasons not to deal with my own problems at work. 

The grief of losing Everly has been immeasurable.  I have spent much of my energy working on grief, writing about grief and faith, telling the story of what Everly meant to us and to the world, and trying to keep taking one step after another.  Recently, however, a pastor friend told me, with some insistence, that it was time for me to seek some counseling help.  I had made good headway in dealing with grief, but the enormity of the loss and the complexity of my other problems would probably greatly benefit from someone who could help guide me through the process.  Since I had asked for his opinion, I thought it right that I would follow his suggestion.  And so far it has meant trying to unravel the knots in which I have gotten myself over many years. 

Having started working on that first question about what rewards I might find in continuing the way I have been living, we pretty quickly moved on to a second question:  "Can you imagine a situation in which you do your daily work without dread, without it causing you so much anxiety?"  And there again I was with another door to open, another knot to untie.  Knowing how things are and what gives me an overwhelming sense of dread, could I see a way to face those things with creativity and energy to see the possibilities for good, not just for more pain? 

Ultimately, I realized I was being asked the question Jesus asked the man at the Pool of Bethesda.  "Mike, do you want to be healed?"  Or was I satisfied that nothing I do would make things better, that the mess I was in was inescapable, that I was destined to be a diminished version of what I once was.  In recent months, I had been talking to close friends about a similar question I was posing to myself.  "Somewhere under the layers of disappointment and frustration, avoidance and waning hope, was the person still in there who once was known always to take initiative, to press through problems, to bear the load when needed, to lead when others faltered?" 

I remember being a different sort of person at home, at work, at church.  But the memory was fading.  I could not untie the knots that bound my energy.  I could not find and assemble the pieces that could that happen again.  I knew that Everly had admired that person.  I feared I had disappointed her as I shrank into a smaller person.  And I no longer had her beside me to hold me up and believe in me when it was hard to believe in myself.  Could those virtues I once displayed ever return?  Could new virtues take seed and grow?

So I don't think I am just parroting "positivity" or "visualizing a better life" when I say that I realized there can be a situation in which my work does not cause me pain and anxiety.  The joy has never left some parts of the work.  It has even grown and flourished as I taught this year, forced by my grief to be more publicly "real" as a person and not just a professorial persona.  Seeking out the comfort and guidance of friends has helped me feel less alone in the world.  Drawing near to my children has reminded me of much of my purpose for living and the fruit that my life already has borne.  Taking on myself the task of continuing a beautiful life that I lived with Everly has inspired me to get serious about how I spend the remainder of my years.

Yes.  I do want to be healed.  Even though the sociality of existence means that others have played a role in my frustrations, I can't continue to leave my destiny in the hands of people who have gone on to other things.  There is a door that has opened, and some strings hanging from the knots have been pulled loose and are longer than they used to be.  Small steps, small accomplishments, small satisfactions--this is the path I am on. 

Good people have agreed to support me with regular conversation and prayer.  I'm not walking alone.  Another crowd of witnesses, a communion of saints, encompasses me.  Loved ones and friends are pulling for me.  My students are a great well of refreshing as they also learn about holding their faith in struggle and about understanding the depths of pain and grief through my teaching.  I cannot help but be aware of the work of the Holy Spirit to guide my feet, order my steps, and make a way out of no way. 

Jesus asked the man a question that got to the heart of the matter.  In this season, I've once again taken up that inquiry. 

Monday, September 30, 2013

The Post I Wanted Never to Write

My last posts in March 2013 came at a time of increasing hope in our family.  Encouraged, I was hoping to become more regular with this blog again.  Everly's cancer had responded so well to chemotherapy in 2012, but then over the winter tumors had started growing and spreading again.  We were beginning to participate in a clinical trial at M.D. Anderson in March, and the initial results were very good.  This trial focused treatment on the liver, where most of the cancer was active.  This treatment was very demanding on us, with trips to Houston every few weeks and lots of clinic visits.  In May, we took a cruise Everly had been wishing for, and it was a wonderful time for our whole family.


While we saw initial good results in the liver, little by little the cancer began to grow in Everly's backbone and spread elsewhere.  In June, we changed directions to try to treat the cancer in her backbone, but during that time the rest of the cancer, especially in her liver, grew rapidly.

In the short span of a month, we went from hopeful about steady progress to realizing it would not be beneficial to continue treatments.  The Everly and I explained this to our children on July 10, and at the end of that week she came home to hospice care.  All of us were able to be with her during those days, and we spent many hours sitting, talking, singing, and hugging one another.  Everly grew less communicative as her liver was failing and the toxins in her body began to make it harder for her to move, speak, or do anything.  She had made peace with her life and her death, and she told us she was ready to go on.  As hard as that was and is for us, we did our best to love and comfort her through that trial.

After only six days in hospice, Everly died at home on the morning of July 18, with all the family present.  She was able to leave behind her pain and struggle and to gain blessed rest and joy in the presence of God.  We are grateful for her life that continues to shape and direct us as we seek to go on with the lives she so thoroughly blessed.

If you want to read more about those days, my reflections, and other people's appreciation of Everly, you can go to the CaringBridge site where I did my writing for the past few months.
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